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Post subject: miami mike
Posted: Fri Nov 07, 2008 12:02 pm
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im very sorry to barely hearing about your condition. i guess when you read a person's posts a certain degree of respect and a feel for that person. what im trying to say is that i have really respected your posts.
i may not know you personally, a larger respect has grown for you.
your recent activism towards colorectal cancer and cancer itself, shines a brighter light on you.

i hope everything turns out for you.
you are in our thoughts and prayers......
joe


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Post subject: Re: miami mike
Posted: Sun Nov 09, 2008 10:38 am
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bluesstrattone wrote:
im very sorry to barely hearing about your condition. i guess when you read a person's posts a certain degree of respect and a feel for that person. what im trying to say is that i have really respected your posts.
i may not know you personally, a larger respect has grown for you.
your recent activism towards colorectal cancer and cancer itself, shines a brighter light on you.

i hope everything turns out for you.
you are in our thoughts and prayers......
joe


Thank you, Joe! I really appreciate that.

Also thanks once again to all of the Fender.com community for your support during this whole 'journey' that I've been on.

I start my 9th cycle (of 12) tomorrow. :) This is a HUGE milestone for me and if at the beginning anyone had told me that I'd be feeling this good after 4 months of chemo, I never would have believed them!!!

Yeah, there are days that are not very comfortable, but all in all, you learn how to deal with it and get over it.

I'm just now starting to see that light at the end of the tunnel and can't wait to have this mediport implant taken out of me and not having to drag a portable infusion pump around.

But, I won't get ahead of myself, I still just think positive and go one step at a time and deal with whatever issues I'm facing and keep movin' on.

So with 2/3 of my treatment down, I begin the final 1/3 and last 4 cycles tomorrow and I thank all of you for your support and I sincerely hope that this thread will help anyone else who finds themselves with a similiar diagnosis. It is treatable and beatable. :!:

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Post subject: Re: miami mike
Posted: Sun Nov 09, 2008 10:43 am
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Nice day today in our neck of the woods, Mike. Take time to smell the Fall air.

More later.

Doc :wink:

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Posted: Tue Nov 11, 2008 1:07 pm
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Today was the coldest morning yet that I had to drive to get my chemo treatments. About 35 degrees with a windchill that made it feel like 25 degrees. :(

I wore gloves and glad that I did because when I left this afternoon I was still cold. Something about that platinum based oxaliplatin that does it. Hopefully in years to come they will find a new med that only kills the bad (cancer) cells and not the good ones also.

It's siesta time now (naps are your friend during chemo :wink: ). I'm hooked up to my portable infusion pump of 5-FU and need some rest before going back tomorrow.

Due to the numbness in my fingers (neuropathy), this is taking me much longer to type than usual, so I'll keep it short for now.

Thanks again to all for the positive support.

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Posted: Tue Nov 11, 2008 1:45 pm
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After recent diversions, it's good to be back on the real medical thread round here.

Mike, from what I've seen this hill goes on getting steeper right to the last step - but that final summit is only weeks away now. Also, in the cases I've been close to (which may not be the same as yours) it was tacitly reckoned that the bulk of the vital work has been done by this stage. What you're into in these last cycles is, so to speak, final fret polishing. Absolutely vital, and a question of turning a good job into a great one - but you have already achieved the lion's share of the work, which is a fabulous accomplishment.

I notice that a day or two ago you said you hadn't expected to feel this good this far in. Now, you may not be able to remember saying that at the lowest bit of your cycle - but it is pretty good news if you can say something like that at all! Brilliant: good for you.

I do hope nobody expects this thread to end on the last day of the final cycle - it ain't quite like that, and everyone needs to hear how things go after that, when life starts getting good again.

But you are nearly there! Fantastic work: very best wishes to you for the last stages of this journey.

Maximum mojo - C


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Posted: Tue Nov 11, 2008 1:52 pm
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[quote="Miami Mike"]

It's always good to hear from you, however, my suggestion is that you type when your sensory input improves. Less likely to damage tissue that way, and stay off the guitars and keyboards as well.

Doc :cry:

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Posted: Wed Nov 12, 2008 8:13 am
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I scheduled my appt later today (11:15am-EST) and have to get ready soon, but today is a short infusion of LX (leucorvorin)sp? then a reconnect to the pump for another 24 hrs of 5-FU.

Ceri, yes I remember saying how much better I felt. I guess it really changed from day to day and that chemofog syndrome is always a possiblity too. I don't think that this thread will end until after my follow-up colonoscopy in the Spring, but the posts will be less frequent when the chemo ends and I just post regarding followup scans and blood tests as they occur.

Good advice, as usual, Doc, just a little bit as I feel fit, per my oncologist's advice. The piano keys are much less taxing than bending guitar strings.

Thanks again for your continued support...got to get things in motion now.

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Posted: Wed Nov 12, 2008 11:13 am
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[quote="Miami Mike"] Another nice day today. Take it slow. Rain tomorrow. :?

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Posted: Thu Nov 13, 2008 9:49 am
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I made it for an early appt today and the rain is coming but not here yet, although it looks threatening out there. :?

After tomorrow I'll be 3/4 through my treatments!!! :D

I asked my doctor what the next steps would be when I finished my treatments at the end of this year and when could I have the surgery to remove the implanted mediport with catheter.

He said that upon completing treatments that I would need to come in to have the port flushed every 6-8 weeks, have some CEA blood tests and that he would be ordering scans and we'd take it from there.

I asked if the mediport could come out if the scans looked okay and he said he likes to keep them in until after the followup colonoscopy which would be in May of 2009 for me.

A friend of mine is renting a place in Cocoa Beach from Jan to April and I'd love to be able to get down there, if even for a week or a few days if I can arrange it with whatever schedules I have going on post chemotherapy. 8)

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Posted: Thu Nov 13, 2008 11:03 am
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[quote="Miami Mike"]........have some CEA blood tests

FYI to the Forum: CEA-124; CA-125; are examples of proteins produced by tumor cells which can be assayed. Their levels can be used as an index of tumor activity.

Doc.

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Posted: Thu Nov 13, 2008 11:34 am
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zzdoc wrote:
Miami Mike wrote:
........have some CEA blood tests

FYI to the Forum: CEA-124; CA-125; are examples of proteins produced by tumor cells which can be assayed. Their levels can be used as an index of tumor activity.

Doc.


You know how I feel Mike !! Please do as your doctor tells you.

PS. It's good to have your input on this type of info Doc!


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Posted: Thu Nov 13, 2008 6:21 pm
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3/4 there Mike!! Hang in there

J


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Posted: Fri Nov 14, 2008 7:39 am
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I went in this morning at 7:30am (EST) and they flushed the port and disconnected the pump...what a GREAT feeling. :D

I'm booked to start the next cycle on November 24th. I might have to carry the pump (in shutoff mode) on Thanksgiving (that Thursday), but with only 3 cycles left, I'm starting to feel the end of the treatments coming very soon. :)

Side effects now are just a little bit of tingling sensation in fingertips and some mild cold sensitivity to food and beverages along with general fatigue.

Thanks again for your continued positive support!

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Posted: Fri Nov 14, 2008 7:48 am
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[quote="Miami Mike"]: Nice to hear that you are feeling upbeat. Enjoy the weekend and to hell with the weather. :wink:

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Posted: Fri Nov 14, 2008 8:22 am
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Mike - I'm glad you're feeling upbeat - positive thinking and a good mood can really help with getting through these treatments.

I'm once again wishing you all the best, and I'm thinking of you buddy, and sending you some mojo, no, make that major mojo.

Have a good weekend.

Gil 8)

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